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Светлана Изамбаева: «Открытость — это свобода»

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В последний день работы Первой российской национальной конференции ВИЧ-сервисных организаций и ЛГБТ-сообщества выступила Светлана Изамбаева, руководитель фонда «Светланы Изамбаевой» (Казань). Выступление Светланы называлось «Люди, живущие с ВИЧ: лидерство, видимость, мобилизация», и, по мнению многих участников, оно стало самым эмоциональным и самым вдохновляющим на конференции.

В свое время Светлана стала первой в России женщиной с ВИЧ, открывшей свое лицо. Она знает о своем диагнозе с 2002 г., а публично открыла статус в 2005 г., когда стала победительницей конкурса красоты среди ВИЧ-положительных девушек «Мисс Позитив». Сегодня Светлана - психолог, консультант, руководитель фонда, эксперт многих российских и международных организаций, однако ее главная роль - рассказывать о своей жизни и поддерживать других своим примером. Возможно, она лучший в России мотивационный спикер. «Вчера я была на семинаре по нарративным техникам. Оказалось, что я практикую нарративный подход много лет - потому что все эти годы я рассказываю историю собственной жизни», — со смехом рассказала Светлана.

Совсем юная на вид, Светлана воспитывает четверых детей - дочь, сына и двух родных младших братьев, которых она опекает после смерти их матери. История борьбы за опеку над братьями стала еще одной историей ее жизни, которая помогает и вдохновляет других - на основе решения суда по ее делу были приняты еще несколько решений по делах об опеке в пользу людей с ВИЧ в других регионах.

Светлана рассказала, как ей было страшно после раскрытия статуса и как она нуждалась в поддержке сообщества в тот момент. Сегодня она сама старается быть такой поддержкой для людей, которые узнают о своей ВИЧ-инфекции и для тех, кто решается говорить об этом публично.

«Для меня особенно важно выступать на конференции ЛГБТ, — говорит Светлана. — ЛГБТ в нашей стране имеют двойную стигму, из-за ВИЧ-статуса и сексуальной ориентации, и мы совместно, имея общий опыт, можем донести информацию о том, как стигма лишает жизней людей, лишает нас возможности дышать и быть свободным в движениях. Прежде всего мы все - люди, независимо от нашего ВИЧ-статуса, ориентации, религии и возраста, и каждый из нас может быть прекрасным родителем, другом, коллегой».

Светлана Изамбаева: “Открытость - это свобода”

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