Жизнь с ВИЧ

Если вам меняют схему лечения ВИЧ

Если вам меняют схему лечения ВИЧ

Сайт ПЕРЕБОИ.РУ создан для сбора информации силами самих пациентов об отсутствии жизненно важных медикаментов для лечения ВИЧ, вирусных гепатитов и туберкулеза.

Перебои с препаратами для ВИЧ-положительных людей наблюдаются в России повсеместно, хотя министерства здравоохранения в регионах опровергают эту информацию, аргументируя этот тем что жалоб никаких не поступало. Чаще всего в СПИД центрах начинают изменять схему лечения без медицинских показания, что очень плохо.

Чем грозит смена препаратов по не медицинским показаниям:

  1. Новые побочные эффекты, к которым человек не адаптировался.

  2. Риск резистентности - тест на резистентность естественно никто не делает.

  3. Возможное изменение кратности приема, что при пожизненной терапии весьма существенно влияет на качество жизни.

  4. Все это влияет на приверженности, подавленную нагрузку и возможность заразить другого человека.

Чтобы у ВИЧ-активистов были аргументы и доказательства, в общении с минздравом, о том что перебои в лечении происходят постоянно, активисты создали сайт на котором вы можете анонимно оставить свой комментарии. Ваши отзывы помогут другим людям с ВИЧ, а также Вам лично. Обычно если сообщений о перебоях из какого-то города много, команда «Пациентского контроля» (объединяет людей с ВИЧ-инфекцией) обращается к губернатору, для того чтобы он проверил местный СПИД центр.

Оставьте сообщение на сайте, если вам:

— не выдали препарат для лечения ВИЧ, туберкулеза или гепатита С;

— изменили схему лечения без медицинских показаний;

— выдали препараты на более короткий срок, чем обычно;

— выдали сироп вместо таблеток или наоборот;

— выдали таблетку, которую нужно дробить или размельчать;

— не берут анализы на CD4 и вирусную нагрузку.

Если вам меняют схему лечения ВИЧ

Консультанты сайта предоставят информацию о возможных путях решения конкретной ситуации обратившегося. Если случай свидетельствует о систематических проблемах, а также имеются сообщения о нескольких подобных ситуациях, движением инициируются запросы/жалобы с требованием о проведении проверок, досрочных закупках терапии ит.д.

Подача жалоб и заявлений в надзорные и контролирующие органы — это один из инструментов решения проблемы, и консультанты сайта подробно расскажут вам о порядке таких действий.

Главное — сохраняйте спокойствие. Помните, что изменение ситуации зависит и от вас. Молчание вредит вашему здоровью.

Сайт ПЕРЕБОИ.РУ работает с 2011 года и изменил судьбы многих людей с ВИЧ.

Если вы нашли ошибку, пожалуйста, выделите фрагмент текста и нажмите Ctrl+Enter.

Не пропусти самые интересные статьи «Парни ПЛЮС» – подпишись на наши страницы в соцсетях!

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176 Comments

  1. 1

    Добрый день. я наблюдаюсь в Екатеринбурге на Ясной 46 мне сменили терапию так как у них нет прежних таблеток. И ходить теперь за терапией надо каждый месяц. и не известно что в следующий раз дадут их терр. анализ на вирусную нагрузку берут раз в пол года. и все остальные анализы теперь редко. в целях экономии. только экономят на нашем здоровье. У меня в данный момент идет привыкание к новой терапии. лчень плохо. И если я раньше принимала 1раз в сутки то теперь.2 раза в день с промежутком 12часов. очень не удобно. Прошу принят к свединью

  2. 2

    Добрый день. Сменили схему сегодня, естественно в связи с перебоями и нехваткой препаратов. Это печально, тк прошлая схема вполне устраивала и не было побочного действия. Но возмутительно другое. На ВН анализ не берут уже третий год. И это печально, тк по сути контроля нет. СД4 конечно улучшается, но вот с нагрузкой мрак и неясность. Что мне эти еденицы и новые схемы арвт если к примеру ВН не снижается или не дай бог увеличивается? Это какой то бред. Да, отмечу что нахожусь в местах лишения свободы, Мурманская область.

  3. 3

    Здравствуйте. Я живу в Алтайском крае, с.Троицкое.Терапию перестали выдавать с марта месяца (принимала калетра и вирокомб, калетра была в сиропе) В мае выдали тоже самое на месяц. В июне сделали замену и выдали калетру, абаковир и ламивудин. Врача инфекциониста у нас нет долгое время, её замещает некомпетентный по этому заболеванию врач. У меня от Калетры побочные в течении всего года, она не знает что делать. Не знает что такое резистентность, она у меня уже есть так как ВН определяется. В общем ужас и не знаю что делать и к кому обращаться.

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